Save Babies Through Screening Foundation UK

Organisation Aims and Activities: We are a Patient Advocate and support organisation for families with children affected by Krabbe Leukodystrophy and other Leukodystrophies/rare diseases. We are a Leeds based charity run entirely by volunteers.We offer support, information and advice for UK families caring for children with these disorders. We preserve and protect the health of children suffering from these disorders in the UK, in partular by funding research and promoting the extension of newborn screening.
Full Street Address: 22 Bransdale Avenue
Postcode: LS20 8QA
patroberts@savebabiesuk.org
Phone: 01943 878770
All Client Groups: Yes
Client Group 1: Children
Client Group 2: Health - Other
Client Group 3: Families / Parents
Primary Service: Advocacy
Other Primary Service 1: Advice /Information Services